Learning Center
Integrating Patient- and Family-Centered Care in Vascular Access Management
Includes a Live Web Event on 01/15/2025 at 1:00 PM (EST)
This session explores the principles of Patient- and Family-Centered Care (PFCC) through the compelling story of an individual living with Short Bowel Syndrome (SBS) since birth, requiring long-term vascular access for 35 years. Audience members will gain insight on strategies to enhance patient and family centered care for individuals living with chronic vascular access needs in their patient settings. This session will highlight patient experiences, health care delivery challenges, and barriers to accessing appropriate and timely care. There will be a focus on resources, language to use, and actions to take to promote collaborative and compassionate delivery of care.
Learning Objectives: At the conclusion of this session, learners will be able to:
- Learn an example of the rare gastrointestinal (GI) chronic disease journey
- Explain Patient- and Family-Centered Care (PFCC)
- Describe the challenges and gaps in requiring long-term vascular access
- Discuss strategies to implement a patient and family-centered approach in current care routine
- Illustrate the mechanisms behind successful partnerships between patient/family and clinical care providers
Swapna Kakani, MPH
Swapna Kakani, MPH, is an advocate, speaker, consultant, and researcher in rare and chronic disease health care delivery and patient experience. Through her platform, Swapna Speaks, Swapna has spoken across the world to various companies and associations and has given a TEDx talk. Swapna also does health care advocacy, research, and policy work for the intestinal failure, vascular access, and broader rare disease communities in her home state of Alabama and nationally. In 2017, she founded Alabama Rare, an organization advancing health care policy and education for Alabama’s rare disease community. In 2021, she, alongside parent researchers/advocates, co-founded the gutsy perspective, a research initiative driven by members of the short bowel syndrome community to ensure the patient and family narrative is represented in research and patient-centered outcomes. Swapna was born with short bowel syndrome and has lived with a combination of total parenteral nutrition (TPN), IV fluids, tube feeding, and an ostomy for 35 years. She received a small intestine transplant 10 years ago. Swapna resides in Huntsville, AL, and received her Master's degree in Public Health at the University of Alabama at Birmingham.
CRNI® RUs: This session has been approved for 2 CRNI® recertification units and meets the non INS Meeting criteria.
Contact Hours: This session has been approved for 1 contact hour
Expiration date for receipt of contact hours: January 15, 2028
To receive contact hours for this educational activity, you are required to attend the entire educational activity and complete the evaluation.
The Infusion Nurses Society is approved as a provider of continuing nursing education by the California Board of Registered Nursing, provider #CEP14209. The certificate must be retained by the attendee for a period of 4 years.
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- Non-member - $45
- Member - Free!
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